LIVE ONLINE! CONNECT WITH SAN DIEGO’S PARKINSON’S MOVEMENT DISORDER SPECIALISTS – SAVE THE DATE AND TIME! PASD IS HERE TO SUPPORT YOU DURING THESE UNCERTAIN TIMES.
The Parkinson’s Association of San Diego is pleased to announce a new series of educational webinars featuring our own San Diego expert Movement Disorder Specialists! Join us to begin your journey of building strength and resilience during this challenging time while sheltering at home.
Next PASD Webinar:
Guadalupe Aguirre
Southern Caregivers Resource Center:
“Self-Care while Staying at Home.”
When: Wednesday June 10, 2020 10:00 AM Pacific Time (US and Canada)
Click here to register in advance for this webinar:
Please sign in at least 15 minutes before the conference begins.
https://us02web.zoom.us/webinar/register/WN_qpaIiQs_RR-mTFeCk5ZN5A
After registering, you will receive a confirmation email containing information about joining the webinar.
Yvonne Amrine, Esq: The Importance of an Up-to-Date Estate Plan in the Age of Covid-19.
May 27, 2020
In this webinar Ms. Amrine, Esq. will discuss the most important financial and medical documents everyone should have completed, executed and available. Having these documents will keep you and your family in control of the outcomes of any related crisis.
Danica’s Scripps Boot Camp Exercise Video
Dear Parkinson’s Community:
It has come to my attention as well as to my fellow movement disorder specialists, that due to these unprecedented COVID times, which has drastically affected access to exercise facilities, many Parkinson’s patients are not able to be as active as they were prior to the pandemic.
As physicians, what we have been seeing clinically is a dramatic change in disease progression and control of overall Parkinson’s symptoms since the start of the pandemic. Although, there are a number of variables that may be causing this effect, like stress, anxiety, or illness, the common thread seems to be a lack of exercise. It is a well known fact, as has been reported in the literature, that exercise has the ability to slow disease progression in Parkinson’s disease and even modulate symptoms when patients adhere to a regular routine regimen that involves Aerobic exercise of at least 3-4 days per week.
Some patients have taken it upon themselves to try to remain active by increasing their daily walking as a substitute for going to the gym or taking an exercise class. Although, we would encourage you to try to remain active, doing whatever exercise you can, it does not appear that walking alone makes for a good substitute for regular routine aerobic exercise at a gym or from an exercise class. I have had many patients tell me that they even increased the duration and frequency of walking and yet still they are doing more poorly in terms of their Parkinson’s symptoms.
Because of the current state we are in with the pandemic, it is of utmost importance to try to remain healthy and keep your Parkinson’s symptoms under control. We want you to know that the Parkinson’s Association of San Diego is here for you and have compiled a list of exercise options that are either pre-recorded online exercise classes or live zoom classes.
Abigail Lawler, MD
Medical Director PASD
Movement and Memory Disorders Specialist
The Neurology Center of Southern California
SmartXPD Live Online Exercise Class with Patrick
Avoid the isolation that can happen during the COVID-19 social distancing and join the SmartXPD Online Exercise Community. Proper exercise has been proven to help manage your health and happiness. Continue your workouts in the comfort of your home!
Bring the Following Equipment:
·2 hand weights (1 or 2 lbs. or (2) water bottles if you don’t have hand weights)
·Medium size towel
·Ball (Tennis ball, golf ball, hand ball, or rolled up socks)
How to Join:
1. Reply to this invite to patrick@smartxpd.com with your email.
2. Download Zoom application to your computer, iPad or Smartphone
3. Check Email and Junk folder for an email from me with instructions
4. Position a chair in front of your computer or phone (preferably armless) and gather requested equipment
5. Get ready for a fun and rejuvenating workout with Patrick
Scripps Shiley Fitness Zoom classes
1. Click zoom link: https://zoom.us/
2. Click Join a Meeting; Enter member ID Number 481 893 3385
Monday: 11:00 a.m. Pilates– Danica
12:00 p.m. HIIT – Courtney
1:00 p.m. – Vinyasa Yoga – Amy
2:00 p.m. – Parkinson’s Balance – Danica
5:00 p.m. Cardio Sculpt – Amy
Wednesday: 10:00 a.m. – Gentle Yoga – Amy
11:00 a.m. – Zumba Gold – Amy
12:00 p.m. – HIIT – Courtney
2:00 p.m. – Parkinsons Balance – Danica
2:30 p.m. – Parkinsons Boxing – Rocky and Courtney
Friday: 11:00 – Healthy Bones – Courtney
12:00 – Cardio Kick – Amy
Dance for PD
Dance for PD® offers internationally-acclaimed dance classes for people with Parkinson’s disease. In Dance for PD® classes, participants are empowered to explore movement and music in ways that are refreshing, enjoyable, stimulating and creative. Dance for PD® teaching artists integrate movement from modern and theater dance, ballet, folk dance, tap, improvisation, and choreographic repertory.
(Sample week’s schedule – go to website for current schedule and click to join)
Monday, May 18 | 10:15-10:30 AM (Meditation); 11 AM-12 PM (Dance)
Tuesday, May 19 | 11 AM-12 PM (Dance); 5:30-6:30 PM (Dance for PD PRO)
Wednesday, May 20 | 10:15-10:30 AM (Meditation); 3-4 PM (Dance)
Thursday, May 21 | 3-4 PM (Dance)
Friday, May 22 | 10:15-10:30 AM (Meditation); 11 AM-12 PM (Dance); 1-2 PM (Sing for PD)
Saturday, May 23 | 11 AM-12 PM (Pilates for PD)
Sunday, May 24 | 11 AM-12 PM (Gentle Yoga for PD)
Exercise is medicine. But all exercise is NOT created equal. Research-based and an integration of meaningful movements as seen through the eyes of a physical therapist specializing in Parkinson’s. PD-Connect classes draw from a variety of Parkinson’s-specific protocols, including OhioHealth’s Delay The Disease™ (The #1 Parkinson’s Exercise Program), PWR!Moves®, NeuroMotorTraining (Karl Sterling), Brian Grant Foundation Boot Camp, Dance for PD®, ParkinsonWise, YogaReach Mindful Movement for Parkinson’s Disease, and adapted movements from martial arts and sports. The focus of each class centers around the principles of cardiovascular health, cognitive well-being, and core-strengthening, all tailored to address the predominant symptoms of PD. The goal of each class is to improve functional mobility, neuroplasticity, balance, strength, voice, cognition, posture, confidence, reduction of freezing, and most importantly, HAVE FUN!
Free exercise programs through Davis Phinney Foundation & University of Rochester
Rock Steady Boxing
Tribute Wall
This is a special place where we honor, remember, and celebrate the lives touched by Parkinson’s disease. Remembrances received as of 5/24/2020
If you’d like to make a Tribute to someone, please click here:
FACT – Coordinated response to COVID-19 Pandemic
In order to assist with the Covid-19 crisis, FACT is offering free transportation for San Diego County residents for any essential need until the stay at home order is lifted. Seniors, persons with disabilities, students, veterans, medical workers and other residents who need assistance, may call FACT at 888-924-3228 between 8am and 3pm, Monday-Friday, to request free transportation anywhere in San Diego County. Drivers and riders are required to wear a face covering while being transported.
Stem Cell Initiative Submits Signatures to Qualify for November Ballot
Overcoming Challenges from COVID-19, the Campaign Activated Patient Advocacy Groups to Collect Signatures by Mail to Cross the Finish Line While Voters ‘Sheltered in Place’
What to Expect and How to Prepare for Coronavirus with Parkinson’s Disease
PARKINSON’S AWARE IN CARE KIT
A MUST HAVE FOR ALL PEOPLE WITH PARKINSON’S IN THE EVENT OF A TRIP TO THE HOSPITAL!
Hello to all our friends in the San Diego Parkinson’s community,
We sincerely hope everyone is doing well during these challenging times of COVID-19. Our goal is to ensure that each and every person with Parkinson’s has all the tools and resources necessary to live their best life. And that includes planning for bumps in the road, as well. We want to remind everyone of an important resource EVERY SINGLE PERSON WITH PARKINSON’S needs to have in their possession in the event of a trip to the hospital. It is the Parkinson’s Aware and Care kit that the Parkinson’s Foundation will ship free to your home. In it you will find all the tools to safely navigate a trip to the hospital, while at the same time managing your Parkinson’s disease effectively. It is very easy to order – just click the link below and add a kit to the cart or call 1.800.473.4636. If anyone has any trouble with ordering, please let us know and we can get one shipped to you.
In addition, attached you will find an important letter from the Parkinson’s Foundation regarding hospitalization, Parkinson’s and COVID-19. Please print and have your Neurologist sign it, and put it in your Aware in Care kit. BE PREPARED!
Lastly, we want to remind everyone, social distancing, correctly stated, is physical distancing. It does not mean social isolation, but rather physical separation to avoid transmission of the virus! With that in mind, there are numerous online support groups and educational programs to keep us all connected throughout this journey. All of the support groups are listed on our website https://parkinsonsassociation.org/. Any questions regarding groups, please call us at 1.858.999.5671.
Stay safe community!
To our Parkinson’s Community:
On March 15th, PASD sent a letter to you all regarding COVID-19. That letter included a recommendation for using the San Diego 211 hotline for up to date information. Unfortunately, that hotline is being flooded with a very high call volume. San Diego County has since asked the community to direct any medical related question to their primary care Physician. The 211 website remains a very good resource, with the most up to date information regarding COVID-19. You can access that website by using the link below.
We are currently living in an unprecedented time of challenge coping with the world wide COVID-19 crisis. The Parkinson’s Association of San Diego wants to provide some helpful community resources you may find useful while you navigate the challenge of taking special care to practice social distancing while ensuring all your basic needs are met. There are many wonderful groups here in San Diego that provide home delivered meals and grocery delivery to those in need. And as a reminder, all pharmacies now offer home delivery. Or better yet, ask for a 90 day supply through your insurance carrier’s mail order pharmacy! Planning ahead reduces stress in the long run. All of this information can also be found on the 211 San Diego website, but wanted to include a few of the groups below.
Non Profit Groups:
- Meals on Wheels San Diego County
- Home Delivered Meals
- Phone Number: 619-260-6110
- Website: https://www.meals-on-wheels.org/
- Notes: Place order days in Advance
- Meals on Wheels is looking for more Volunteers!
- ElderHelp
- Phone number: (619) 284-9281
- Website: https://www.elderhelpofsandiego.org/
- Friendly Visits and calls
- Grocery Shopping-no cost
- Seniors A Go Go- Medically Necessary Rides
- Elderhelp is looking for more Volunteers!
- Jewish Family Services
- Home Delivered Meals
- Website: https://www.jfssd.org/
- Phone Number: (858) 637-3210
- Case/Care Management
- Phone Number: (858) 637-3210
- On-the-go (Rides limited to medical rides/grocery shopping only)
- Phone Number: (858) 637-7320
- JFS is looking for more Volunteers!
- FACT
- Transportation needs for those 60+
- Phone Number: 888-924-3228
Website: https://factsd.org
For Profit Restaurant Delivery Services:
*All can be ordered through computer or Smartphone App with an account.*
- Door Dash
- Uber Eats
- Grub Hub
- Postmates
HELPFUL SAN DIEGO COUNTY WEBSITE FOR UP TO DATE COVID-19 INFORMATION:
For more information, refer to the websites listed below.
Tremble Clefs® San Diego
Click here to find a convenient location near you.
Tremble Clefs® San Diego is a fun and free, nonprofit, therapeutic singing program for people living with Parkinson’s and their care partners and is generously supported by a community grant from the Parkinson’s Foundation. Under the guidance of a professional choral director, we sing popular songs along with active movement that provides singers with benefits that may relieve common symptoms of the disease.
• Improved vocal strength and flexibility
• Improved swallowing
• Socialization and community
• Free 2-hour weekly sessions with refreshments
• No singing experience or audition required
Tremble Clefs San Diego is a 501(c)(3) non-profit organization EIN:81-1192837. The Tremble Clefs name and logo brandmarks are property of Tremble Clefs San Diego. ©2019, Tremble Clefs San Diego.
- Veterans Crisis Line: Connect with the Veterans Crisis Line to reach caring, qualified responders with the Department of Veterans Affairs. Many of whom are Veterans themselves. The Veterans Crisis Line is free, confidential support, available 24/7 for all Veterans, Service members, National Guard and Reserve, and their family members and friends.
- Helping Others Hold On: Compared to the civilian population, suicide rates among military Service Members and Veterans are very high. This series of lessons gives tools and tips to recognize, understand, and combat suicidal feelings in Veterans. Talking about suicide can actually help a Veteran and any support they receive can make a difference in their lives.
- S.A.V.E.: Our hope for this course is that you will become empowered to play a vital role in suicide prevention. This course was developed in collaboration with the Department of Veterans Affairs and is presented by Dr. Megan McCarthy, Deputy Director of Suicide Prevention. You will develop a general understanding of the problem of suicide in the United States, understand how to identify a Veteran who may be at risk for suicide, and know what to do if you identify a Veteran at risk. Each of us has the opportunity to be that one person who makes a difference — the person who asks the question that can save a Veteran’s life, or the life of anyone struggling with the thoughts of suicide. Using the simple steps of S.A.V.E., we can all make a difference.
- Boys & Girls Club of America: Virtual Learning and Engagement Resources: Boys & Girls Clubs of America is providing resources all youth, youth-serving organizations, and families can use during this time.
Exercise
- The American Heart Association: Ways to Get Moving: Incorporate physical activity breaks at home to help your kids get their recommended 60 minutes or more of physical activity a day.
- The Cooper Institute: Students participating in the FitnessGram assessment gain a better understanding of their own health-related fitness. Schools that include the FitnessGram assessment in their physical education programs are better equipped to meet student fitness needs and teach healthy habits that will last well into the future.
Financial Support
- Gary Sinise Foundation: Any military service members, Veterans, first responders, and their families affected by COVID-19 can apply for financial assistance through an initiative of the Foundation’s Relief and Resiliency program, called H.O.P.E. (heal, overcome, persevere, and excel).
Food Insecurity & Recipes
- Feeding America: The Feeding America nationwide network of food banks secures and distributes 4.3 billion meals each year through food pantries and meal programs throughout the United States. They lead the nation to engage in the fight against hunger. Contact your local community food bank to find food or read about public assistance programs.
- Minestrone Soup: add or subtract ingredients based on what you have in the house, freeze any leftovers for later.
- Pasta Salad: add or subtract ingredients based on what is available to you.
- Ground Beef Stuffed Pepper: substitute with ground chicken, ground pork, or more veggies based on your taste.
- Scrambled Egg Muffins: a great option to make ahead and then refrigerate for later.
- allrecipes.com has a lot of recipes and you can find recipes based on ingredients you have in your house via their “ingredient search” filter.
Fun Ideas While at Home
- 12 Museums around the World that offer Virtual Tours: Google Arts & Culture collection includes the British Museum in London, the Van Gogh Museum in Amsterdam, the Guggenheim in New York City, and literally hundreds of more places where you can gain knowledge about art, history, and science. This collection is especially good for students who are looking for ways to stay on top of their studies while schools are closed.
- Virtual Field Trips: Virtual field trips are a great way to expose kids to new places all from the comfort of home. In this age of technology, so many museums, zoos, and aquariums have set up virtual tours and webcams of their facilities. Now more than ever, is it easier to visit destinations around the world from the comfort of your couch.
- Online Workout Resources: These are the 50 best resources for free online workouts that make it easy for you to exercise at home. Whether you have just a few minutes for a quick core workout, or if you’d like to join a month-long daily yoga challenge, there is something here that will help you exercise at home.
- What to Watch, Listen to, and Cook During Quarantine: You are staying home and you need a distraction. The New York Times updates this recommendation list every weekday.
Healthcare Support
- Alcoholic Anonymous: Browse the Online Meeting Directories. Email, chat, audio, and forums meetings in a variety of languages are in progress.
- Centers for Disease Control: The outbreak of coronavirus disease 2019 (COVID-19) may be stressful for people. Fear and anxiety about a disease can be overwhelming and cause strong emotions in adults and children. Coping with stress will make you, the people you care about, and your community stronger.
- Department of Veterans Affairs: Call your VA Medical Center before going to a clinic, urgent care, or emergency room, especially if you have symptoms of fever, cough and shortness of breath. Calling first helps us protect you, medical staff, and other patients. Ask your VA health care team about the option of care by phone or video instead of an in-person visit. We also ask that visitors who feel unwell postpone their visits to VA facilities. Visit the Centers for Disease Control (CDC) for the latest coronavirus information. You can also read about VA’s public health response.
- National Institutes of Health: NIH provides the most up-to-date research information on COVID-19 and guidance from the Centers for Disease Control.
Online Caregivers Support/Community
- Hidden Heroes: If you are a military caregiver, we encourage you to connect with a community of your peers via Hidden Heroes’ secure Facebook group and Caregiver Q&A, to share experiences and advice with those who’ve been there. They also offer access to educational online courses to help you through the challenges of caregiving.
- Operation Family Caregiver: Operation Family Caregiver can be delivered to caregivers anywhere in the United States via video conferencing, phone, or in-person in several locations. Complete and send the referral form to their national office, or contact one of these sites to learn more about how Operation Family Caregiver might help you. Reaching out is a sign of strength.
- Hope For The Warriors: Hope for the Warriors understands the challenges, pride, and joy of being a military family. For today, tomorrow, and years to come, we will strive to meet the changing needs of service members and their families.
- VA Caregiver Support: VA’s National Caregiver Support Line (CSL) serves as a primary resource/referral center to assist caregivers, Veterans, and others seeking caregiver information. VA’s Caregiver Support Line has licensed caring professionals standing by.
Self-Care
- PsychArmor: The United States is home to more than 5.5 million military caregivers. Sponsored by The USAA Foundation, Inc., PsychArmor offers courses to help caregivers balance their duties and need for self-care. This library of 45+ courses provides information, resources, and strategies on how to manage the demands and stressors of caregiving.
SCRC’s Virtual Family Caregiver Class from the Comfort of Your Home!.
Caregiver Corner
Watch quick tip videos on caregiving.
Podcast
Tune into “Let’s Talk Caregiving” podcasts for candid discussions on various caregiving topics.
Family Caregiver Classes
Visit recorded live streamed classes and learn ways to manage your caregiving journey.
Digital Newsletter
Click on Wavelengths Newsletter for news updates, articles, and useful resources.
Home Safety Made Easy
PASD Postpones 5K Step by Step Walk
3/12/2020
After careful assessment of the Corona virus situation, the Parkinson’s Association of San Diego is postponing its 5K Step by Step Walk that was scheduled for Saturday, April 4th at Liberty Station.
We have received tremendous response for this event and we appreciate everything that everyone has done to support it to date. Going forward, we will let you know as soon as we are able to determine a new date for the Walk.
All donations, sponsorships and individual and team registration information will be retained and re-activated relative to the new date.
Understandingly, if needed and you would like a refund, please contact us and we will accommodate.
Thank you again for your terrific support, as it enables us to continue to provide critical resources for those in San Diego County that have, or are impacted by, Parkinson’s disease.
Also, while we are waiting to be able to confirm a new date for the Walk in the coming months, if you’d like to register or make a contribution, please call this number: 858 200 7277.
To see event details, team information, donate, or volunteer, please visit: https://raceroster.com/events/2020/20273/fighting-parkinsons-step-by-step-5k
Thank you.
Dolomite Fundraising Trek 2020
Update regarding the Dolomite Trek from Sherrie Gould:
Dear All,
It’s been quite the whirlwind of decision making about our upcoming trek to the Italian Dolomites! Do we go? Do we not? Do we even want to THINK about being on an airplane for 14 hours in light of COVID-19???? How about our deposits?
Finally, I have some answers! I have been communicating with our trekking company Dolomite Treks, Anna and Isabelle….great news, they are going to issue a credit of our full deposit to be applied to our NEW trekking date in 2021 of JULY 9 through July 16th (leaving on the 17th). This is GREAT news!!!! We will begin our training schedule in February of 2021. Cool weather training, how fabulous is that??
Our fundraising efforts will continue…Remember we have a $2000 commitment to the wonderful Parkinson’s Association of San Diego….we have lots of time to make our commitment.
Also we have had some spots have open up. If you know of anyone who would like to join us please let me know.
So during this continued time of readjustment to the “new normal” we will all have something HUGE to look forward to…an international trip to experience the Dolomites during peak wildflower season..amazing. I would love to organize some hikes for our group way before February of 2021 but right now is still too soon to get together in large groups. We ill do so once it is safe.
We are strong…and determined…we can mange adversity and change…we have power over Parkinson’s and power to endure social distancing.
Big hugs and high hopes and excitement for the future?
Sherrie
This 8 night, nine day mountainous hike in Northern Italy is to empower those with Parkinson’s disease to know “THEY CAN” and to inspire others around the world with Parkinson’s to do more than they ever thought possible! This adventure will take place from September 5 to September 13th, 2020. Training for the hike will begin in April with a kickoff hike at Lake Poway. We will stay in a combination of mountain “Refugios” (huts) and in small hotels sprinkled throughout the Dolomite mountains. Whether you hike with us virtually (we will tell you how) or join us in Italy this effort will reward you with power, friendships and a huge sense of accomplishment for years to come. We are so proud to be raising money for the wonderful Parkinson’s Association of San Diego….not only will we be healing ourselves but our altruistic endeavors will reward this wonderful community we live in. JOIN US!
Please donate to the event and/or sponsor a hiker
,
THANK YOU!
Empowerment Day 2019
Empowerment day and all other PASD programs occur as a result of your amazing generosity! Please consider donating if you would like to further assist those in the San Diego community that are impacted by Parkinson’s Disease
Click here to donate
The day set records for number of attendees, sponsors, and exhibitors!
Thank you all for making this possible!
Click here for videos, speaker presentations, and powerpoints!
Image Gallery
View images from the event below
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Thank you for your support!
Parkinson’s Association
Until and after a Cure is Found…
Please Help Us Maximize our Support Efforts!
Empowerment Day 2018!
In conjunction with its partners and sponsors, the Parkinson’s Association of San Diego holds a full day symposium each year of presentations, education and exhibits regarding Parkinson’s disease.
It is a very positive day of Learning, Sharing and Empowering one’s self and each other. This short 1:39 video captures of the essence of the November 30, 2018 Empowerment Day Event.
Videos and pictures of the speakers, their powerpoints, pictures and presentation materials follow this video and/or are posted on our website. For more information, please call 858-999-5671.
Click here to see pictures and videos of the event.
Click here for presenters videos and more pictures…
Parkinson’s Association of San Diego offers critical resources to thousands of individuals who are affected by Parkinson’s disease right here in San Diego County.
Your help is critical to sustain our outreach and our ability to serve the community. All contributions remain in the County to support Parkinson’s patients as well as help local caregivers and families of those in need.
Gala
Parkinson’s Association
October 6, 2018
A HUGE thank you to all who contributed to the success of the “Knock-Out” Parkinson’s gala on Saturday, October 6 at the Birch Aquarium in La Jolla. The event was an overwhelming success. Keynote speaker Rasheda Ali gave an inspiring presentation to the overflow crowd of over 330 attendees.
CBS Channel 8 News Anchor Carlo Cecchetto, emceed the evening that included tributes to Dr. Dee Silver for a Lifetime Achievement and several other San Diego Parkinson’s Community leaders. The live and silent auctions added to the excitement of the evening.
Empowerment
for Parkinson’s
November 30, 2018
Parkinson’s Association of San Diego, in conjunction with its partners and sponsors, holds a full day of presentations, education, and exhibits about Parkinson’s disease. Come for a fun day of Learning, Sharing and Empowering yourself and each other. Videos, pictures and presentation materials for previous events are available.
Rock Steady Boxing
Fox Sports
Rock Steady Boxing
Rock Steady Boxing
“Rock Steady Boxing (RSB) enables people with Parkinson’s to fight their disease by providing non-contact boxing-style fitness programs that improve their quality-of-life and sense of efficacy and self-worth.
Recent studies also suggest that intense exercise programs may be “neuro-protective,” actually working to delay the progression of symptoms.
National Parkinson’s Organizations
Parkinson’s Association of San Diego | P.O. Box #1633, Solana Beach, California 92075
858-999-5671 | info@parkinsonsassociation.org
