The California Parkinson’s Disease Registry

Dear Friends,

 

Please take a minute to call or write the legislature in support of the funding of the CALIFORNIA PARKINSON’S REGISTRY. This registry will gather basic information from diagnosed Parkinson’s patients and allow researchers to identify the causes of the disease and its progression, and lead to PREVENTION and a CURE. The information gathered from the Registry will be tremendously helpful to researchers, saving us precious TIME and RESEARCH DOLLARS in our efforts on behalf of patients and their families.

 

The pioneering work of UCLA scientists has shown that there is a correlation between environmental toxins such as pesticides, and Parkinson’s disease, as well as the involvement of genetic factors.  In 2004, Governor Schwarznegger signed into law the establishment of the California Parkinson’s Disease Registry. However, budget constraints prevented the funding for the Registry.

 

THE LEGISLATURE ARE MEETING AGAIN TO DETERMINE WHETHER THE REGISTRY SHOULD BE FUNDED. PLEASE TAKE A MOMENT TO WRITE OR CALL THEM IN SUPPORT OF FUNDING before May 1. I have attached a sample letter, which you can use (or personalize) to contact them. There are also a couple of fact sheets about the registry. To hear an interview about it, Please go to http://kvta.com/on-air/sundays/locals-only/ , then click on “Click here for podcasts!”

 

Senator Holly J. Mitchell, Chair

Senate Subcommittee #3 on Health and

Human Services

State Capitol, Room 5080

Sacramento, CA 95814

Phone: (916) 651-4030

Email: nancy.strohl@sen.ca.gov

 

Assembly Member Tony Thurmond, Chair

Assembly Committee on Health and Human Services

State Capitol, Room 5150

Sacramento, CA 94249-0015

Phone: (916) 319-2015

Email: tyrone.mcgraw@asm.ca.gov

 

PLEASE URGE ALL YOUR FRIENDS AND FAMILY TO SUPPORT THIS IMPORTANT CAMPAIGN BY CALLING OR WRITING!

 

Thank you,

 

Kathy Shenassa, PhD
Scientific Programs Coordinator
Integrative Center for Neural Repair and Center for the Study of Parkinson’s Disease at UCLA
www.cspd.ucla.edu
(310) 267-1782

 

 

CA PD Registry Campaign Brochure

 

Letter to Chairs for CA PD Registry

 

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