Susan Rubio

Position: Mentor for Newly Diagnosed with Parkinson's
Categories: Mentors for Newly Diagnosed

When I was first diagnosed September 2019, I didn’t know anything about Parkinson’s. I had been having various symptoms for months which resulted in me being sent to the ER by an Urgent Care doctor and then by ambulance again by my Primary Care doctor who thought I was having a stroke. I had multiple tests and MRIs but no diagnosis. I was seen by a neurologist twice and then finally was sent for a DATScan which confirmed with my symptoms that I had PD. I educated myself as much as possible and I am now involved in multiple research studies and I want to be able to help others that are newly diagnosed to understand what is happening to them and to be able to get the resources and help they need.

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