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PASD Parkinson’s Resource Center

Books on Parkinson’s

Parkinson’s Diva: A Woman’s Guide to Parkinson’s Disease – Book

Care Partner and Care Giver Resources

Care Partners and the Newly Diagnosed with Dr. Abigail Lawler

Care Partners and Dementia with Dr. Abigail Lawler

Care Partners Taking Care of Themselves with Jessie Agrimis, DPT

Parkinson’s Training – Palliative Care vs. Hospice Care with Sherrie Gould, NP

Southern Caregiver Resource Center Website

Coast Care – A Trusted Provider of In-home Care and Care Management in San Diego, CA – WEBSITE

Caring for a Loved One with Mesothelioma – Website

Adult Day Care from “Today’s Caregiver” – Article

Clinical Trials and Research Projects

Study looking at the effects of head injuries on Parkinson’s Disease

Smell Loss and Brain Health

Continuous Blood Pressure Monitoring

The Orchestra Study medication clinical research study for people with early-stage Parkinson’s disease.

Study – Effects of Blood Pressure on Cognition and Cerebral Oxygenation in PD

UNLV Study on Gait and Balance

UNLV STUDY ON THE HEALTH & HEALTHCARE NEEDS OF PEOPLE LIVING WITH PARKINSON’S DISEASE

PERSEVERE, testing an educational program for family caregivers

Depression and Anxiety

Cognition, Depression, and Anxiety and How to Manage Them, A Davis Phinney Foundation Webinar, Runs :40

Depression and Anxiety in Parkinson’s and How to Manage Them, A Davis Phinney Foundation Webinar, runs 1:00

Diet and Nutrition

Eating with Parkinson’s, Article by Marty Acevedo, MS

Eating Well with Parkinson’s Disease, A Davis Phinney Foundation Webinar, Runs 1:00

Early and Young Onset Parkinson’s

Young Onset Parkinson’s Disease, A Davis Phinney Foundation Webinar, Runs :56

Exercise and Parkinson’s

PASD Webinar – Attitude and Exercise with Sherrie Gould, NP, Runs :45

Coach Me Strong Informational Meeting – Webinar (30 min) December 2020 – Jeff Seckendorf and Marty Acevedo

Exercise, Strength, and Energize – Webinar May 13, 2020 – Danica Eldebrock, Scripps Health, Runs 1:06

What Makes Exercise for Parkinson’s Unique – Video, July 31, 2020 – Patrick LoSasso, CSCS, Runs :37

Movement: LSVT Big and Loud Therapies – Webinar April 27, 2020 – Judy Mak, Scripps Health, Runs 1:00

Punching Back at Parkinson’s with Exercise – Video, March 26, 2020 – Michael Braitsch, Davis Phinney Foundation, Runs :34

Mind and Body While Sheltering at Home – Webinar, April 22, 2020 – Mindy Bixby, MD MDS, Scripps Health, Runs :56

NeroLab 360 – We offer both live and recorded exercise classes for individuals with Parkinson’s Disease – Website

Balanced Rhythm Studio – Website and Flyer

Dance for PD – Website

Parkinson’s patients hope ‘Ping Pong’ will slow disease progression. See the CBS-8 Zevely Zone story.

Financial Aid for Medications

MyRytary – A personalized program designed to assist with access and affordability.

PAN Foundation – Need help paying for treatments?

RX Advocates – You may qualify for prescription assistance.

Hospitalization or Surgery

Entering a Hospital if You Have Parkinson’s with Dr. Abigail Lawler

Intimacy in PD with Shelia Silver, MA, DHS, ACS and PMD Alliance – Webinar, 1 hour

Recognizing Sexual Dysfunction in PD with Mariam Perry and PMD Alliance, 1 hour

Sex, Love and Parkinson’s – Michael J. Fox Foundation Webinar, 1 hour

Living Well with Parkinson’s

Behavioral Health Challenges – Webinar by Dr. Joanne Hamilton, 1 Hour

Parkinson’s for Primary Care Doctors and Allied Health Professionals with Ray Dorsey, MD – Video, 1 hour

Self Care While Staying at Home with Valeria Ochoa – Webinar, 1 hour

Spotlight on Emotional Health and Mental Health with Sherrie Gould and PMD Alliance–Video, 45 minutes

Living with Parkinson’s: Mind, Mood and Motion – Video 1 Hour

Social Connection and Parkinson’s with Al Condeuci, PhD and the Davis Phinney Foundation – Video 1 hour

Whole Health and Parkinson’s with Wayne Jonas, MD and PMD Alliance – Video, 1 hour

Kindra and Caryn: Straight talk with the Safety Sisters – Webinar 1 hour

Autonomic Dysfunction and Parkinson’s with C. Padmakumar and PMD Alliance – Video, 1 hour

Understanding Advance Care Planning and Hospice with Farrah Daly, MD and PMD Alliance – Video, 1 hour

Living in the Moment When the Moment is Unprecedented from Michael J. Fox Foundation – Video, 1 hour

How to Live Well with Parkinson’s witth Amy Carlson and the Davis Phinney Foundation – Webinar, 20 minutes

Cognition and Psychosis with Daniel Weintraub, MD and PMD Alliance – video, 48 minutes

Tips for Better Living with Parkinson’s with Michael Okun, MD and the Davis Phinney Foundation – Video 1 hour

Home Care Assistance – Care Customized for You. We learn about your care needs and interests then develop a unique Care Plan.

Downsizing with Jonathan Schwartz of Partner in Aging

Fall Prevention and Home Safety with Paige Hargis

National Council on Aging Home Safety

Memory Care in California – Website

Memory Care Resource Directory – PDF

Newly Diagnosed with Parkinson’s

Good Start Program

How to Live Well with Parkinson’s for the Newly Diagnosed

I’ve Got Parkinson’s…Now What? Navigating a New Parkinson’s Diagnosis

Newly Diagnosed: Living Your Best Life with Parkinson’s

Minds in Motion Video – Take Control Program, runs 14:00

Minds in Motion Video – Falls and Parkinson’s, runs 15:00

Minds in Motion Video – Postural Awareness, runs 29:00

Parkinson’s Symptoms

Not Just the Shakes: Non-Motor Symptoms of Parkinson’s with Maya Katz, MD and the Davis Phinney Foundation – Video, 30 minutes

Freeze, Shuffle, Fall: Parkinson’s and Gait Youtube withSimon Lewis, MD and PMD Alliance – Video, 1 hour

Non-motor Symptoms in Parkinson’s Disease with Deborah Boland, DO Parkinson and PMD Alliance – Video, 45 minutes

Urinary Dysfunction in Parkinson’s with Jalesh Panicker, MD and PMD Alliance – Video, 1 hour

Pain and Parkinson’s with Janis Miyasaki and the Davis Phinney Foundation – Video, 52 minutes

Parkinson’s Training – Off Time Episodes

Parkinson’s Training – Bladder and Other Urinary Issues

Parkinson’s Training – Cognitive Issues

Parkinson’s Training – Low Blood Pressure and Orthostatic Hypotension

Parkinson’s Training – Mood Disorders

Parkinson’s Training – Sleep Disfunction with Sherrie Gould, NP

Parkinson’s Training – Speech, Drooling, and Swallowing

Parkinson’s Training – Daytime Fatigue

Parkinson’s Training – Weight Loss

Parkinson’s Training – Atypical Parkinson’s

Service Animals with Andria Young Parkinson and PMD Alliance – Video, 40 minutes

Service Dogs of Virgina – Website

Off-Leash K9 Training (Service Dog Training) – Website

USA Service Dog Registration – Website

Off-Leash K9 Training (Certified Service Dog Trainers in Northern Virginia) – Website

Sleep and Parkinson’s

Sleep and Parkinson’s with Dr. Ronald Postuma – Webinar, 1 hour

Sleep and Parkinson’s – Dr. Graham Alec Glass – Video, 1 hour

Optimizing Sleep: Better Rest in Restless Times with Naoya Ogura, OTR/OTD-L and PMD Alliance – Video, 1 hour

Therapy for Parkinson’s

Parkinson’s Physical Therapy Panel from the Davis Phinney Foundation – Video, 1 hour

Live Life Out Loud! About Music Therapy for PD with Lindsay Zehren Parkinson and PMD Alliance – Video, 1 hour

Spiritual Care and the Palliative Model with Judy Long Parkinson and PMD Alliance – Video, 1 hour

Parkinson’s Training – Driving Issues with Kathy Huynh, NP

FACT Transportation Program – Free local transportation for people with Parkinson’s.

Sharp Adapted Driving Program – Website

Treatments for Parkinson’s

Introducing Neuropalliative Care with Benzi Kluger, MD MS and PMD Alliance – Video, 1 hour

The Painful Parkinson’s: Range, Nature and Treatment with Ray Chaudhuri, MD and PMD Alliance – Video, 1 hour

Biopsy, Biomarkers and Brain Donation with Charles Adler, MD PhD and PMD Alliance – Video, 1 hour

Patient-Centered Outcomes, Research, and PD Progression with Laurie Mischley, MD PhD MPH and PMD Alliance – Video, 1 hour

Benefits for Veteran Caregivers – Website

Veterans Assisted Living Assessment and Benefits – Website

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Benefits for Veteran Caregivers – Website

PASD Parkinson’s Resource Center
Veterans
Benefits for Veteran Caregivers – Website

https://www.blogs.va.gov/VAntage/80154/inclusive-care-program-expand-across-va/

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