PASD Parkinson’s Resource Center

Books on Parkinson’s
1 Topic
Parkinson’s Diva: A Woman’s Guide to Parkinson’s Disease – Book
Care Partner and Care Giver Resources
8 Topics
Care Partners and the Newly Diagnosed with Dr. Abigail Lawler
Care Partners and Dementia with Dr. Abigail Lawler
Care Partners Taking Care of Themselves with Jessie Agrimis, DPT
Parkinson’s Training – Palliative Care vs. Hospice Care with Sherrie Gould, NP
Southern Caregiver Resource Center Website
Coast Care – A Trusted Provider of In-home Care and Care Management in San Diego, CA – WEBSITE
Caring for a Loved One with Mesothelioma – Website
Adult Day Care from “Today’s Caregiver” – Article
Clinical Trials and Research Projects
8 Topics
Study looking at the effects of head injuries on Parkinson’s Disease
Smell Loss and Brain Health
Continuous Blood Pressure Monitoring
The Orchestra Study medication clinical research study for people with early-stage Parkinson’s disease.
Study – Effects of Blood Pressure on Cognition and Cerebral Oxygenation in PD
UNLV Study on Gait and Balance
UNLV STUDY ON THE HEALTH & HEALTHCARE NEEDS OF PEOPLE LIVING WITH PARKINSON’S DISEASE
PERSEVERE, testing an educational program for family caregivers
Depression and Anxiety
2 Topics
Cognition, Depression, and Anxiety and How to Manage Them, A Davis Phinney Foundation Webinar, Runs :40
Depression and Anxiety in Parkinson’s and How to Manage Them, A Davis Phinney Foundation Webinar, runs 1:00
Diet and Nutrition
2 Topics
Eating with Parkinson’s, Article by Marty Acevedo, MS
Eating Well with Parkinson’s Disease, A Davis Phinney Foundation Webinar, Runs 1:00
Early and Young Onset Parkinson’s
1 Topic
Young Onset Parkinson’s Disease, A Davis Phinney Foundation Webinar, Runs :56
Exercise and Parkinson’s
11 Topics
PASD Webinar – Attitude and Exercise with Sherrie Gould, NP, Runs :45
Coach Me Strong Informational Meeting – Webinar (30 min) December 2020 – Jeff Seckendorf and Marty Acevedo
Exercise, Strength, and Energize – Webinar May 13, 2020 – Danica Eldebrock, Scripps Health, Runs 1:06
What Makes Exercise for Parkinson’s Unique – Video, July 31, 2020 – Patrick LoSasso, CSCS, Runs :37
Movement: LSVT Big and Loud Therapies – Webinar April 27, 2020 – Judy Mak, Scripps Health, Runs 1:00
Punching Back at Parkinson’s with Exercise – Video, March 26, 2020 – Michael Braitsch, Davis Phinney Foundation, Runs :34
Mind and Body While Sheltering at Home – Webinar, April 22, 2020 – Mindy Bixby, MD MDS, Scripps Health, Runs :56
NeroLab 360 – We offer both live and recorded exercise classes for individuals with Parkinson’s Disease – Website
Balanced Rhythm Studio – Website and Flyer
Dance for PD – Website
Parkinson’s patients hope ‘Ping Pong’ will slow disease progression. See the CBS-8 Zevely Zone story.
Financial Aid for Medications
3 Topics
MyRytary – A personalized program designed to assist with access and affordability.
PAN Foundation – Need help paying for treatments?
RX Advocates – You may qualify for prescription assistance.
Hospitalization or Surgery
1 Topic
Entering a Hospital if You Have Parkinson’s with Dr. Abigail Lawler
Intimacy
3 Topics
Intimacy in PD with Shelia Silver, MA, DHS, ACS and PMD Alliance – Webinar, 1 hour
Recognizing Sexual Dysfunction in PD with Mariam Perry and PMD Alliance, 1 hour
Sex, Love and Parkinson’s – Michael J. Fox Foundation Webinar, 1 hour
Living Well with Parkinson’s
18 Topics
Behavioral Health Challenges – Webinar by Dr. Joanne Hamilton, 1 Hour
Parkinson’s for Primary Care Doctors and Allied Health Professionals with Ray Dorsey, MD – Video, 1 hour
Self Care While Staying at Home with Valeria Ochoa – Webinar, 1 hour
Spotlight on Emotional Health and Mental Health with Sherrie Gould and PMD Alliance–Video, 45 minutes
Living with Parkinson’s: Mind, Mood and Motion – Video 1 Hour
Social Connection and Parkinson’s with Al Condeuci, PhD and the Davis Phinney Foundation – Video 1 hour
Whole Health and Parkinson’s with Wayne Jonas, MD and PMD Alliance – Video, 1 hour
Kindra and Caryn: Straight talk with the Safety Sisters – Webinar 1 hour
Autonomic Dysfunction and Parkinson’s with C. Padmakumar and PMD Alliance – Video, 1 hour
Understanding Advance Care Planning and Hospice with Farrah Daly, MD and PMD Alliance – Video, 1 hour
Living in the Moment When the Moment is Unprecedented from Michael J. Fox Foundation – Video, 1 hour
How to Live Well with Parkinson’s witth Amy Carlson and the Davis Phinney Foundation – Webinar, 20 minutes
Cognition and Psychosis with Daniel Weintraub, MD and PMD Alliance – video, 48 minutes
Tips for Better Living with Parkinson’s with Michael Okun, MD and the Davis Phinney Foundation – Video 1 hour
Home Care Assistance – Care Customized for You. We learn about your care needs and interests then develop a unique Care Plan.
Downsizing with Jonathan Schwartz of Partner in Aging
Fall Prevention and Home Safety with Paige Hargis
National Council on Aging Home Safety
Memory Care
2 Topics
Memory Care in California – Website
Memory Care Resource Directory – PDF
Newly Diagnosed with Parkinson’s
7 Topics
Good Start Program
How to Live Well with Parkinson’s for the Newly Diagnosed
I’ve Got Parkinson’s…Now What? Navigating a New Parkinson’s Diagnosis
Newly Diagnosed: Living Your Best Life with Parkinson’s
Minds in Motion Video – Take Control Program, runs 14:00
Minds in Motion Video – Falls and Parkinson’s, runs 15:00
Minds in Motion Video – Postural Awareness, runs 29:00
Parkinson’s Symptoms
15 Topics
Not Just the Shakes: Non-Motor Symptoms of Parkinson’s with Maya Katz, MD and the Davis Phinney Foundation – Video, 30 minutes
Freeze, Shuffle, Fall: Parkinson’s and Gait Youtube withSimon Lewis, MD and PMD Alliance – Video, 1 hour
Non-motor Symptoms in Parkinson’s Disease with Deborah Boland, DO Parkinson and PMD Alliance – Video, 45 minutes
Urinary Dysfunction in Parkinson’s with Jalesh Panicker, MD and PMD Alliance – Video, 1 hour
Pain and Parkinson’s with Janis Miyasaki and the Davis Phinney Foundation – Video, 52 minutes
Parkinson’s Training – Off Time Episodes
Parkinson’s Training – Bladder and Other Urinary Issues
Parkinson’s Training – Cognitive Issues
Parkinson’s Training – Low Blood Pressure and Orthostatic Hypotension
Parkinson’s Training – Mood Disorders
Parkinson’s Training – Sleep Disfunction with Sherrie Gould, NP
Parkinson’s Training – Speech, Drooling, and Swallowing
Parkinson’s Training – Daytime Fatigue
Parkinson’s Training – Weight Loss
Parkinson’s Training – Atypical Parkinson’s
Service Dogs
5 Topics
Service Animals with Andria Young Parkinson and PMD Alliance – Video, 40 minutes
Service Dogs of Virgina – Website
Off-Leash K9 Training (Service Dog Training) – Website
USA Service Dog Registration – Website
Off-Leash K9 Training (Certified Service Dog Trainers in Northern Virginia) – Website
Sleep and Parkinson’s
3 Topics
Sleep and Parkinson’s with Dr. Ronald Postuma – Webinar, 1 hour
Sleep and Parkinson’s – Dr. Graham Alec Glass – Video, 1 hour
Optimizing Sleep: Better Rest in Restless Times with Naoya Ogura, OTR/OTD-L and PMD Alliance – Video, 1 hour
Therapy for Parkinson’s
3 Topics
Parkinson’s Physical Therapy Panel from the Davis Phinney Foundation – Video, 1 hour
Live Life Out Loud! About Music Therapy for PD with Lindsay Zehren Parkinson and PMD Alliance – Video, 1 hour
Spiritual Care and the Palliative Model with Judy Long Parkinson and PMD Alliance – Video, 1 hour
Transportation
3 Topics
Parkinson’s Training – Driving Issues with Kathy Huynh, NP
FACT Transportation Program – Free local transportation for people with Parkinson’s.
Sharp Adapted Driving Program – Website
Treatments for Parkinson’s
4 Topics
Introducing Neuropalliative Care with Benzi Kluger, MD MS and PMD Alliance – Video, 1 hour
The Painful Parkinson’s: Range, Nature and Treatment with Ray Chaudhuri, MD and PMD Alliance – Video, 1 hour
Biopsy, Biomarkers and Brain Donation with Charles Adler, MD PhD and PMD Alliance – Video, 1 hour
Patient-Centered Outcomes, Research, and PD Progression with Laurie Mischley, MD PhD MPH and PMD Alliance – Video, 1 hour
Veterans
2 Topics
Benefits for Veteran Caregivers – Website
Veterans Assisted Living Assessment and Benefits – Website
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Hospitalization or Surgery

PASD Parkinson’s Resource Center Hospitalization or Surgery

Any surgery or trip to the hospital can amplify some symptoms in those with Parkinson’s. In this section we offer some resources for preparing and dealing with hospital visits and surgery.

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